Friday, August 21, 2009

I Have Some News!

First of all...thank you so much for your kind comments and emails! The support that comes from all of you helps more than I can put into words! Thank you, thank you!! xoxoxoxoxoxo

Ok...Dr K from Tampa called me yesterday to let me know I DO NOT HAVE MS! Oh happiness!!! My EEG stuff all looked great, so the Lyrica is doing it's job. The last 5-6 weeks of headaches/vomiting etc was from the spinal tap. Dr K said that headachy people do not do well with spinal taps. I coulda used that little gem of information, I'll tell ya. I honestly thought I was dying. Even had my funeral music picked out on a playlist in iTunes. No kidding. Ok, I'm kidding. I'm not that gruesome. Hardly.

The MRI showed a past bleed or enlarged artery deep inside my brain. Doc says it's old and healed and there's really no way to tell when it happened or if it's the cause of my seizures. He said he's pretty sure it shouldn't be a problem for the future but it's something to remember if I ever get a blinding headache. Ok...noted!!!

So what's the problem with my muscles??? He's not sure as he's an MS expert, but he did say it could be metabolic. He mentioned I probably won't be running any more marathons. Oh...yes...he...did..say...that!!!! He doesn't know me too well, now does he??? I actually laughed on the phone when he said that! He laughed and said ok, but he didn't reccommend me doing a tri because of the swimming. Which at first I didn't let register, but my husband says he probably thought it wouldn't be good if I was out doing a 2 mile swim and my muscles decided to quit on me. Being out swimming wouldn't be an ideal place for THAT to happen. As I've never had the urge to be shark bait, I won't worry about that.

Me being me and having major access to Google...I perused the buffet of medical problems and found something I could use. (LOL) There's a metabolic "thing" called "McArdle's Disease" that fits my pain-in-the-ass (and legs) symptoms. While I am not convinced of anything until I see my Doc next week, I was surprised to see one thing that really stood out: "What Do Marathon Runners And McArdle's Disease Have In Common?" Turns out that they both have trouble with the glycogen "hitting the wall" thing. Which is how I feel after running a shorty these days! I went ahead and emailed Doc K in Tampa with my slueth-like findings. I will have an answer to this!!!

So anyway...I got the go ahead to start my training back up. I am going to go slow. I want to try a few things that I read about with the glycogen replenish stuff. Elizabeth (LIZ as I fondly call her) has been getting into this subject and I will be gathering info from her. She has her wee little 16 miler planned this weekend. I figure 16 miles might be a tad too much for me right now, so I'm going to meet her there around 8am on my bike and then run the last couple miles with her.

Let the games (re) begin!!!!!

Hugs to all!!!!!!


Regina said...

I think I can sense a bit sigh of relief? Getting some answers, albeit slowly?

I'm so happy to hear you do not have MS. I'm curious to know if they can regulate this metabolic disorder (if that is what it is).

You sound very happy, and that is the best medicine.

Glaven Q. Heisenberg said...

Great news, sister! You're on the comeback trail!

Mel-2nd Chances said...

I knew you'd be back... great news for sure. I'm very happy for you. Stay positive, try not to freak yourself out too much by self diagnosis via google though (i'm guilty of doing the same lol). YAY! Happy weekend!

Cindi H said...

Thank goodness for Dr. Google!

So very, very, very glad for your very, very, very good news!

Sherry said...

Kimmy, I am SOOOOO relieved for you! NO MS!!! That is just wonderful news!!!

Do you think you might see an endocrinologist now and perhaps someone who specializes in metabolic disease? There HAS to be something out there to help.

I would have laughed too if someone said 'no more running' for you. I could give up triathlon next week, but I could NEVER give up running! Ha! "No running" is not in my vocab.

Let me know when you're back on your feet. We can get together for a short, EASY run... make it all fun again. Lord knows that I also need that right now.


joyRuN said...

Very awesome that you're getting some answers, Kim!

And huge props to you for taking charge of your health stuff & being an active participant.

Happy training!!!!